Socioeconomic Overview of Families with Chronic Diseases
DOI:
https://doi.org/10.30651/jkm.v9i4.23705Keywords:
chronic disease, economic, family, psychosocial, socialAbstract
Chronic disease is a source of the highest stress, not only the patient but also involves the entire family. The burden of chronic disease has had an impact on the psychosocial and financial conditions of families. This research aims to determine the psychosocial and economic impact on families with chronic diseases. The research is a descriptive-observative study with a cross-sectional approach. The research sample consisted of 120 people selected through a screened sampling approach. The research results showed that 51.7% of respondents felt a decrease in income due to chronic illness and borrowed money to meet their needs. The most felt psychosocial impacts were reduced participation in social activities (60%) and changes in communication patterns within the family (55%). The majority of respondents also felt an increase in closeness between family members due to the care process provided (75%). This research concludes that the socio-economic conditions of families can change due to family members experiencing chronic illnesses, therefore nurses have an important role in providing support to patients and families to adapt to these conditions.
References
Adib-Hajbaghery, M., & Ahmadi, B. (2019). Caregiver burden and its associated factors in caregivers of children and adolescents with chronic conditions. International Journal of Community Based Nursing and Midwifery, 7(4), 258–269. https://doi.org/10.30476/IJCBNM.2019.73893.0
Al-Sanaani, E. A., Ismail, A., Manaf, M. R. A., Suddin, L. S., Mustafa, N., Sukor, N., Alabed, A. A. A., Alkhodary, A. A., & Aljunid, S. M. (2022). Health insurance status and its determinants among patients with type 2 diabetes mellitus in a tertiary teaching hospital in Malaysia. PLoS ONE, 17(5 May), 1–17. https://doi.org/10.1371/journal.pone.0267897
Boscart, V., Crutchlow, L. E., Sheiban Taucar, L., Johnson, K., Heyer, M., Davey, M., Costa, A. P., & Heckman, G. (2020). Chronic disease management models in nursing homes: A scoping review. BMJ Open, 10(2). https://doi.org/10.1136/bmjopen-2019-032316
Bulls, M. J. (2001). Interventions for women as family caregivers. Annu Rev Nurs Res, 19.
Gise, J., & Cohen, L. L. (2022). Social Support in Parents of Children with Cancer: A Systematic Review. Journal of Pediatric Psychology, 47(3), 292–305. https://doi.org/10.1093/jpepsy/jsab100
Golics, C. J., Khurshid, M., Basra, A., Salek, M. S., & Finlay, A. Y. (2013). The impact of patients’ chronic disease on family quality of life: An experience from 26 specialties. International Journal of General Medicine, 6, 787–798. https://doi.org/10.2147/IJGM.S45156
Huguet, N., Hodes, T., Liu, S., Marino, M., Schmidt, T. D., Voss, R. W., Peak, K. D., & Quiñones, A. R. (2023). Impact of Health Insurance Patterns on Chronic Health Conditions Among Older Patients. Journal of the American Board of Family Medicine, 36(5), 839–850. https://doi.org/10.3122/jabfm.2023.230106R1
Iovino, P., Vellone, E., Cedrone, N., & Riegel, B. (2023). A Middle-Range Theory of Social Isolation in Chronic Illness. International Journal of Environmental Research and Public Health, 20(6). https://doi.org/10.3390/ijerph20064940
Jayathilaka, R., Joachim, S., Mallikarachchi, V., Perera, N., & Ranawaka, D. (2020). Chronic diseases: An added burden to income and expenses of chronically-ill people in Sri Lanka. PLoS ONE, 15(10 October), 1–25. https://doi.org/10.1371/journal.pone.0239576
Juntunen, K., Salminen, A. L., Törmäkangas, T., Tillman, P., Leinonen, K., & Nikander, R. (2018). Perceived burden among spouse, adult child, and parent caregivers. Journal of Advanced Nursing, 74(10), 2340–2350. https://doi.org/10.1111/jan.13733
Kalandari, E., Govina, O., Tzonichaki, I., Adamakidou, T., Mantoudi, A., Apostolara, P., Drakopoulou, M., & Mantzorou, M. (2023). Exploration of the Relationship between the Burden and Family Support among Family Caregivers of Older Adults with Chronic Diseases: A Cross-Sectional Study. International Journal of Caring Sciences, 16(1), 51. www.internationaljournalofcaringsciences.org
Makhtar, A., Ab Ghani, N. N., Syed Elias, S. M., & Ludin, S. M. (2023). Social support and associated factors among family caregivers of older people in NorthEast Peninsular Malaysia. Belitung Nursing Journal, 9(1), 69–78. https://doi.org/10.33546/bnj.2334
Martarelli, R., Casanova, G., & Lamura, G. (2022). The impact of long-term care needs on the socio-economic deprivation of older people and their families: A scoping review protocol. PLoS ONE, 17(8 August), 1–13. https://doi.org/10.1371/journal.pone.0273814
National Institute of Mental Health (NIMH). (2024). Understanding the Link Between Chronic Disease and Depression. In National Institute of Mental Health. https://www.nimh.nih.gov/health/publications/chronic-illness-mental-health
Okediji, P. T., Ojo, A. O., Ojo, A. I., Ojo, A. S., Ojo, O. E., & Abioye-Kuteyi, E. A. (2017). The Economic Impacts of Chronic Illness on Households of Patients in Ile-Ife, South-Western Nigeria. Cureus, 9(10). https://doi.org/10.7759/cureus.1756
Sharma, N., Chakrabarti, S., & Grover, S. (2016). Gender differences in caregiving among family - caregivers of people with mental illnesses. World Journal of Psychiatry, 6(1), 7. https://doi.org/10.5498/wjp.v6.i1.7
Thomson, J., Shah, S. S., Simmsons, J. M., & Sauers, H. S. (2017). Financial and Social Hardships in Families of Children with Medical Complexity. J Pediatrr, 172(May), 187–193. https://doi.org/10.1016/j.jpeds.2016.01.049
Velilla, L., Acosta-Baena, N., Allen, I., Lopera, F., & Kramer, J. (2022). Analysis of family stigma and socioeconomic factors impact among caregivers of patients with early- and late-onset Alzheimer’s disease and frontotemporal dementia. Scientific Reports, 12(1), 1–10. https://doi.org/10.1038/s41598-022-16400-2
Whitehead, L., Jacob, E., Towell, A., Abu-qamar, GDeD, M., & Cole-Heath, A. (2017). The role of the family in supporting the self-management of chronic conditions: A qualitative systematic review. Journal of Clinical Nursing, 27(1–2), 22–30. https://doi.org/https://doi.org/10.1111/jocn.13775
World Health Organziation. (2018). Noncommunicable diseases country profiles 2018. https://apps.who.int/iris/handle/10665/274512
World Health Organziation. (2022). Noncommunicable diseases. https://www.who.int/news-room/fact-sheets/detail/noncommunicable-diseases
Yang, J., Lin, L., Gao, Y., Wang, W., & Yuan, L. (2022). Interventions and strategies to improve social support for caregivers of children with chronic diseases: An umbrella review. Frontiers in Psychiatry, 13, 1–13. https://doi.org/10.3389/fpsyt.2022.973012
Yigitalp, G., & Gumus, F. (2017). Issue 3| Page 1168 of Community Health Nursing. International Journal of Caring, 10(3), 1168–1177. www.internationaljournalofcaringsciences.org
Zhao, P., Li, K., & Coyte, P. C. (2023). The Impact of Non-communicable Chronic Disease on the Earned Income of Working Age Chinese Resident. Humanities and Social Sciences Communications, 10(476), 1–9. https://doi.org/https://doi.org/10.1057/s41599-023-01961-y
Downloads
Published
Issue
Section
License
Copyright (c) 2024 Lintang Puspita Prabarini Prabarini, Annisa Rahmi Galleryzki, Sekarini
This work is licensed under a Creative Commons Attribution-ShareAlike 4.0 International License.
- Penulis tetap memegang hak atas karyanya dan memberikan hak publikasi pertama kepada jurnal ini yang secara simultan karya tersebut dilisensikan di bawah:Â Creative Commons Attribution-ShareAlike 4.0 International (CC BY-SA 4.0)
